Sometimes, change happens so gradually that you’re not aware of it until after it’s well underway. And sometimes, you can pinpoint the exact moment your life changed, naeeowing the point down so precisely that the watershed between Before and After is a matter of minutes.
On January 7, 2005
at 3:35 PM, I got my first shot of
Enbrel. I went home to have a nap and when I woke up at 6 PM, I was a different person. I could feel the drug working. It took weeks, months and years to get stronger – the amazing thing is
that today, 8 years later, I am still getting stronger – but that’s the moment.
January 7, 2005 at 3:35 PM is my watershed.
I often refer to it as The Miracle, capital letters and all,
because that's what it was to me. I write about it often, because I think of it
often. I believe that when you are the recipient of something so profound as
the gift of life, it should be honoured. And I talk about it, too, because I am
proof of the reason to hope that even the most stubborn cases of RA will
eventually find the thing that works. After 40 years of nothing working for me,
finally something is. It hasn't solved all my problems — there is still pain
and plenty of it, flaring of symptoms, the addition of fibro and my disability
isn’t going anywhere, either. But all of that is largely manageable and noise
that varies from blaring to muttering in the background. What is important is
the foreground and that's where I live my life.
And this is the amazing part of this miracle, this thing
about living my life. Because I am. Everything I do is because of 3:35 PM on January 7, 2005. The fact that I have quality of life is
because of the miracle. That I can be part of my family, contribute to my
community and work is because of the miracle. That I live independently instead
of in an institution, that I have the ability to look after another living
being, that I do my own banking and grocery shopping and that my dining room
table is a mess because cleaning bores me, not because I can't clean. That I
have found the love of my life, that I'm exhausted all the time because I work
too hard and that I laugh every day. That I am alive.
This is why I call it The Miracle. Because without it, I
would have none of that which makes my life worth living. Or maybe not even life
itself.
Today is the anniversary of me getting my life back, but it
is more than that. It is an anniversary, a birthday and my New Year's all
rolled up into one quietly personal day of reflection and celebration and more
than a bit of awe.
That is, usually quiet. This year, I'm sharing the joy
because of something else. Something that could not happen without The Miracle.
My lifelong dream of having a book with my name on it is thisclose to being a
reality. We're still working on getting the ducks all neatly lined up in a row,
but sometime in the next few weeks, it’ll be out there. And it’ll look like
this
I can't wait to share it with you all!

11 comments:
Thank you for writing this. My Enbrel Miracle was four years earlier than yours, but the watershed reaction is still vivid!
WOO! BOOK!
Next thing we know you'll be on a book tour Lene. The book looks really good based on the cover and extrapolating from the advice I've read written by you
What a beautiful post, Lene. I'm so glad that Enbrel worked to bring your RA under control, and glad that life has been so lovely in spite of the warts and stains that come with it. I feel honored to know you, even if only through our blogs.
I can't wait to read your book! Bravo!
I can't wait to read the book and I can't of a better person to write it! So glad for these biologicals that bring hope to us. Andrew
Yay!!
How wonderful. I am so very pleased that you got this gift of life from a purely selfish point of view. If it hadn't happened, I wouldn't have received the gift of reading your blog. Thank you to those very clever doctors for giving the world your words.
Awesome Lene!!! I can't wait for the book release. Excellent Work Girl!!! :)
The changes in both our lives, especially yours, since we first met online so long ago are truly amazing. I'll be buying a copy as I'm pretty sure much would apply to psoriatic arthriits, which is what Mom has.
YAY!!! SO cool! And thank you; I'd been wondering about the overall trajectory with the meds and you answered that very very well. I am relieved and grateful beyond words.
I am so glad. Congratulations!!!
My watershed was in Sept of last year - these are in fact miracle drugs! It began to work literally overnight - I couldn't believe it. And I couldn't believe they had made me wait so long! But it was nothing compared to your wait. Then I thought of all the people before me who didn't have these drugs or the people for whom they don't work or people who have no insurance to get these expensive meds; my heart just breaks for them.
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